AN AMMAN VALLEY woman is appealing to others affected by epilepsy to monitor their seizures in a bid to protect their health and wellbeing, following the tragic death of her brother aged just 47.
Jen Morris, from Glanamman, lost her brother Michael in January after he suffered a fatal seizure at his home, despite being fit and healthy.
Michael was diagnosed with epilepsy when he was just 11 years old, but had managed his condition well into adult life and was “totally independent,” Jen said.
She added: “By the time Michael became an adult he hadn’t had a seizure in many years. At one point his doctor even suggested that he might be able to come off the medication, but he decided to keep on it as he was going through a very difficult time in his life.
“We were worried that he would end up having a seizure because of the stress he was under. He came home from work one day and he was due to meet his partner to have dinner, but he never showed up. Unfortunately he was found dead on the floor at home.
“Michael was self-managing his condition and he was totally independent – he was a partner in an estate agency – and he didn’t need anyone checking up on him. He was fit and healthy and was playing football the night before he died.
“The coroner phoned us the next day to say what the cause of death was. I just don’t understand how there was never any warning about it – it came totally out of the blue.
“I’m desperately trying to raise awareness so that people know more about epilepsy, the risks, and the steps that can be taken to reduce the chances of something like this happening.”
Jen’s appeal comes during Epilepsy Awareness Month, which has seen her helping to raise awareness of the Sudden Unexpected Death in Epilepsy (SUDEP) Action charity, which cares for the bereaved and works with families and professionals to help save lives.
A useful free app to help people self-manage their condition has been developed by a collaborative in south east England, including Plymouth University; Cornwall Foundation NHS Trust; Royal Cornwall Hospital and SUDEP Action, and is available to download at https://www.sudep. org/epilepsy-self-monitor.
Hywel Dda University Health Board is also doing its bit to help people with epilepsy manage their condition at home by appointing a specialist Sapphire Nurse, Claire Larkin, on a permanent basis.
Claire runs supportive clinics across the health board for people with epilepsy, and provides home visits, care plans and new ways of working to keep people independent at home. She has recently started running clinics in Aberaeron, Tenby, Prince Philip Hospital in Llanelli and Glangwili General Hospital in Carmarthen, where she works alongside a neurologist.
Kathryn Davies, Executive Director of Commissioning, Therapies and Health Science at Hywel Dda University Health Board, added: “Specialist nurses are such an important part of epilepsy care and Claire’s role is proving to be a huge support and help to people with epilepsy across the area.
“This enables the health board to improve our pathway of care for people with epilepsy, and provide more specialist care locally.”
Llanelli High Street shortlisted for prize
LLANELLI HIGH STREET has been shortlisted in the Government’s Great British High Street Awards, in proud partnership with Visa, putting them in the running for up to £15,000.
After a rigorous selection process led by a panel of independent judges, the high street has been shortlisted for the Rising Star category, which celebrates high streets which are taking the lead to adapt and diversify.
The bid by Ymlaen Llanelli follows research commissioned by Visa in April 2019 demonstrating the positive impact that the local high street has on communities. The research found that nearly three quarters of consumers (71%) in Wales say that shopping locally makes them feel happy, with nearly half (45%) citing supporting local shops and knowing where their money is going as the main reason. Spending time with friends and family (25%) and offering a sense of community (18%) were other reasons cited for why high streets make people feel happier. The research also reveals that half of consumers (50%) feel that their high street gives them a sense of pride in their local community.
High Streets Minister Jake Berry MP said: “Congratulations to Llanelli for being shortlisted for the Rising Star Award for this year’s Great British High Street Awards.
“Llanelli high street is a hive of activity, with food festivals, childrens’ days and community get-togethers all part of the local calendar. A great example of how high streets can bring a renewed energy to communities.
“People are happier when they can see their hard-earned cash support local businesses. That is why we are celebrating those that go above and beyond to keep their high streets thriving for generations to come.”
Sundeep Kaur, Head of UK & Ireland Merchant Services at Visa, added: “We’ve seen some fantastic entries for this year’s Great British High Street Awards across both the Champion High Street and Rising Star categories. In particular, the desire to innovate stands out amongst this year’s entries, with high streets adapting to the challenges presented by a rapidly changing retail environment to find ways to thrive at a local level.
“As our research shows, high streets play a vital role at the heart of communities, so this is a great opportunity for those communities with shortlisted high streets to show their support by placing their votes on the Great British High Street website.”
Llanelli High Street is one of the 28 high streets that have been shortlisted for the Rising Star category, identifying high streets which are taking the lead to adapt and diversify. 12 high streets have been shortlisted in the Champion High Street category, which recognises the UK’s best high streets. All 40 high streets are now in the running to win a prize of up to £15,000 to be dedicated to a local high street initiative.
Head Teacher at Primary school in Llanelli suspended
THE HEAD TEACHER of a Welsh primary school has been suspended, it has been confirmed.
Catherine Lloyd-Jenkins, who is head at Ysgol Gymraeg Ffwrnes in Llanelli, has been suspended from her duties at the school with immediate effect.
Governors at the school have been unavailable for comment, but Carmarthenshire Council confirmed the news this morning.
It is understood that the chair of the governing body is currently out of the country, and the council would not comment further on the circumstances surrounding the suspension.
The council’s director of education, Gareth Morgans, said: “School staffing is a matter for the Governing Body, however, we can confirm the headteacher of Ysgol Ffwrnes has been suspended.
“It is not appropriate to comment further.”
Mrs Lloyd-Jenkins has worked at Ysgol Gymraeg Ffwrnes for 23 years, taking up a post at the school in 1996.
She has been the headteacher there for almost 20 years, taking over the role in 2000. She has also worked as a peer inspector at Estyn, the education and training inspectorate for Wales confirmed.
According to one local councillor, ‘serious concerns’ have been raised about the school in recent months.
“Local residents and parents have approached us raising serious concerns about the school in question,” said Carmarthenshire councillor Rob James.
“We are in dialogue with senior council officers to assert whether the allegations are credible and what action the council and governors have taken in response to these allegations.”
Dyfed-Powys Police numbers at record low, say Labour
POLICE officers based across the Dyfed-Powys area are now at their lowest levels in the last decade, with over 300 officers being lost across the region, claim Carmarthenshire Labour.
According to a freedom of information request by Carmarthenshire Labour, police officers based across Carmarthenshire, Pembrokeshire and Ceredigion are down 42% and are at record lows in both Carmarthenshire and Ceredigion.
The figures published by Dyfed-Powys Police show that Carmarthenshire has lost 160 officers in the last ten years, Pembrokeshire is down 107 officers and Ceredigion has lost 56 bobbies on the beat.
These figures come off the back of a poor report by Her Majesty’s Inspectorate of Constabulary that shows the force has gone backwards in the last year, with crime also on the increase.
HMIC’s recent PEEL (Police effectiveness, efficiency and legitimacy) report noted concerns about Dyfed-Powys Police’s performance in keeping people safe and reducing crime and specifically warned of failures to assess all incidents of domestic abuse.
Carmarthenshire Labour Leader Cllr Rob James claims that the figures show that the current Police and Crime Commissioner is now performing worse than their predecessor.
Rob James stated: “These figures that show a dramatic decrease in police numbers are extremely worrying and reinforce what communities are saying across Dyfed Powys – there are simply not enough police officers in our areas.
“The fact that we now have lower police numbers in the three counties compared to the end of the last Police and Crime Commissioner’s term with crime now on the rise illustrates that the Plaid Cymru Commissioner is failing in his duty to protect our communities.
“We need urgent action to make our communities safe once more, as there is a clear link between the loss of youth provision and cuts to officer numbers, and the rise of crime in our communities.
“There is little evidence that our Commissioner has grasped the nettle over the last three years in tackling this important issue.”
These claims however, have been slapped down by Police and Crime Comissioner, Dafydd Llewellyn. He said that said that Cllr James had misunderstood or misrepresented the information provided to him.
The Carmarthen data have a significant rider attached to them.
The explanatory note reads: ‘It should be noted that the figures for Carmarthenshire police division between 2008 and 2018 are not comparable as the structure of Carmarthenshire division in 2018 has altered to that of 2008 which has impacted upon the figures provided’.
That explanation is expanded upon concerning the Ceredigion data. Regarding them, an explanatory note warns that: ‘[T]he structures between 2008 and 2019 are not comparable as some sections that were recorded divisionally now come under the HQ remit, e.g. the Road Policing Unit, CID, etc.’.
Dafydd Llewelyn pointed out that note in his response to The Herald: “As outlined in the response to the Freedom of Information request, structures between 2008 and 2019 are not comparable as some sections that were recorded as divisionally based are now recorded under the HQ remit, for example, Roads Policing Unit, CID.”
Dafydd Llewelyn continued: “Since taking up my role as the elected person to represent the many communities across the four counties served by the force, I have increased the overall resource available by 4%. I have ploughed funding into dedicated teams to support front line officers and have invested in resources to support the most vulnerable in our communities.
“I have commissioned services specific to their needs – be that as victims of domestic abuse or young people choosing to leave their homes for reasons unknown to authorities. I will continue to do this. I will not be held to account by numbers on paper alone, but by the difference I can make to individuals’ quality of life.
“I will also use the opportunity I have to campaign for services appropriate to the very specific needs an area the size of Dyfed-Powys Police has and will work with the force to adapt according to those needs.”
He concluded by pointing out: “Carmarthenshire, Ceredigion, Pembrokeshire and Powys remain the safest counties nationally and I’m proud to be driving a service that is willing and able to flex and respond, despite the financial challenges faced day-in-day-out.”
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