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Appeal after tragic epilepsy death



Jen Morris: With Michael, who tragically died following a seizure

Jen Morris: With Michael, who tragically died following a seizure

AN AMMAN VALLEY woman is appealing to others affected by epilepsy to monitor their seizures in a bid to protect their health and wellbeing, following the tragic death of her brother aged just 47.

Jen Morris, from Glanamman, lost her brother Michael in January after he suffered a fatal seizure at his home, despite being fit and healthy.

Michael was diagnosed with epilepsy when he was just 11 years old, but had managed his condition well into adult life and was “totally independent,” Jen said.

She added: “By the time Michael became an adult he hadn’t had a seizure in many years. At one point his doctor even suggested that he might be able to come off the medication, but he decided to keep on it as he was going through a very difficult time in his life.

“We were worried that he would end up having a seizure because of the stress he was under. He came home from work one day and he was due to meet his partner to have dinner, but he never showed up. Unfortunately he was found dead on the floor at home.

“Michael was self-managing his condition and he was totally independent – he was a partner in an estate agency – and he didn’t need anyone checking up on him. He was fit and healthy and was playing football the night before he died.

“The coroner phoned us the next day to say what the cause of death was. I just don’t understand how there was never any warning about it – it came totally out of the blue.

“I’m desperately trying to raise awareness so that people know more about epilepsy, the risks, and the steps that can be taken to reduce the chances of something like this happening.”

Jen’s appeal comes during Epilepsy Awareness Month, which has seen her helping to raise awareness of the Sudden Unexpected Death in Epilepsy (SUDEP) Action charity, which cares for the bereaved and works with families and professionals to help save lives.

A useful free app to help people self-manage their condition has been developed by a collaborative in south east England, including Plymouth University; Cornwall Foundation NHS Trust; Royal Cornwall Hospital and SUDEP Action, and is available to download at https://www.sudep. org/epilepsy-self-monitor.

Hywel Dda University Health Board is also doing its bit to help people with epilepsy manage their condition at home by appointing a specialist Sapphire Nurse, Claire Larkin, on a permanent basis.

Claire runs supportive clinics across the health board for people with epilepsy, and provides home visits, care plans and new ways of working to keep people independent at home. She has recently started running clinics in Aberaeron, Tenby, Prince Philip Hospital in Llanelli and Glangwili General Hospital in Carmarthen, where she works alongside a neurologist.

Kathryn Davies, Executive Director of Commissioning, Therapies and Health Science at Hywel Dda University Health Board, added: “Specialist nurses are such an important part of epilepsy care and Claire’s role is proving to be a huge support and help to people with epilepsy across the area.

“This enables the health board to improve our pathway of care for people with epilepsy, and provide more specialist care locally.”

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Public Services Board seeks views to improve local well-being



CARMARTHENSHIRE’S Public Services Board (PSB) is seeking residents’ views to find out what matters to them and their local communities.

The PSB has developed its Well-being Objectives and draft actions to deliver them, based on feedback received on its Well-being Assessment. The results of a survey at that time gathered views and helped shape the PSB’s understanding of the economic, social, environmental, and cultural factors that impact the well-being of individuals and communities within Carmarthenshire.

Once again, residents are being asked to contribute to help public service partners develop Carmarthenshire’s Local Well-being Plan for 2023-28.

To help shape the future of well-being please visit: Current Consultations (

The survey closes on 25 January 2023.

Cllr Darren Price, Chair of the Carmarthenshire PSB and Leader of Carmarthenshire County Council, said: “To deliver what is important to our communities, we need to their feedback and input. This survey is an opportunity for our residents to tell us if we, as public services, are on the right track to help create a better future for our children’s generation, and the generations to follow, as we strive to reach this goal.” 

Andrew Cornish, Vice-Chair of the PSB andChief Executive Officer / Principal of Coleg Sir Gar and Coleg Ceredigion said: “Thank you to everyone who has contributed to our work so far. Our Well-being Assessment gives us a strong foundation on which to build our Well-being Plan and I would like to encourage everyone to take part in our involvement work for the preparation of the Plan.”

Carmarthenshire’s Public Services Board is a partnership of public and third sector organisations working together to improve well-being across the county and includes Carmarthenshire County Council, Hywel Dda University Health Board, Mid and West Wales Fire and Rescue Service, Natural Resources Wales and other organisations.

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Llanelli prepares for Sunday’s Remembrance Day parade



LATER TODAY (Sunday, November 13) the town will honour those who have fallen in service over the decades.

A number of roads will be closed on the day, including Murray Street, Church Street and Vauxhall Road from its junction with the mini roundabout.

These will be shut for the parade between 8.30am and noon, however, pedestrian access for those wishing to reach individual properties in those streets will be maintained where possible throughout the duration of the closure.

Traffic will be diverted to Robinson Street, Arthur Street, Columbia Row, Anne Street, Bigyn Road, Stepney Place, Water Street, Thomas Street and Gelli Onn.

At 10am, police, organisations and others not marching in the parade will take up their respective positions in front of the cenotaph in the town hall grounds, while the civic party will assemble inside Llanelli Town Hall.

At 10.15am the parade leaves Drill Hall for the town hall with the mayor Cllr Philip Warlow proceeding to the Boer War Memorial where he will lay a wreath.

When the parade arrives at the town hall, the civic party will proceed to the cenotaph where the Lord Lieutenant of Dyfed Sara Edwards, will lay a wreath.

This will be followed by the chair of Carmarthenshire Council Cllr Rob Evans, laying a wreath on the Royal Welch War Memorial and then on the town’s cenotaph.

More wreaths will be laid by dignitaries and politicians and ex-servicemen and women A two-minute silence will then be observed at 11am.

Any service groups or individuals who wish to lay a wreath on Remembrance Sunday can contact Paul Wickers via email at

While community organisations are to contact Llanelli Town Council at

Contact should be made by Monday, October 31 at the very latest to confirm arrangements as no additional wreaths will be able to be accommodated on the day.

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Llanelli choir launches fundraising naked calendar



MEMBERS of a Llanelli female choir have bared all to raise money for the town’s Ty Bryngwyn Hospice.  

Côr Curiad has created a cheeky fundraising calendar for 2023 – the second one they have done.

With around 50 members, photos were taken across Llanelli with strategically placed items to spare their blushes – all in the name of a good cause.

Llanelli photographer Graham Harries was behind the lens for the project.

The choir’s musical director Alex Esney, who is Miss December in the calendar said: “Local businesses sponsored the calendar and so many of the photos were taken at their premises.

“So for example we went to LTC Mobility Ltd and had scooters carefully positioned in front of us, it was a lot of fun.

“I also want to thank Ffwrnes Theatre for opening up especially for me to go and have my photo taken with the piano there.”

Alex said the aim is to raise as much as possible for the hospice, adding: “We did a calendar a few years ago but we now have more members so we thought it was time to do it all again.

“The ladies decided to ‘bare all’ to raise money for the hospice which provides such great care and support for families in their time of need, including two of our own.

“I think we pulled out all the stops this year, getting their clothes off at local businesses in and around Llanelli.”

One of the calendar photos (Images: Graham Harries Photography)
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